Please hold Josiah and his family close to your heart and make a very special Christmas gift today.
When Josiah was born with a hole in his heart and a life-limiting neurometabolic condition, his family’s world was turned upside down.
For Josiah’s parents Ruth and Travis, every single day comes with unwavering hope for his survival.
Josiah’s neurometabolic condition affects him every day and night. He has difficulty breathing and is susceptible to respiratory illnesses with multiple cases of serious pneumonia. His vision is significantly impaired, and he has low muscle tone that make it impossible to do simple things like sit on his own.
Josiah needs round-the-clock complex care, including constant monitoring of his oxygen levels, seven medications multiple times a day, and extensive support from specialists. To this day, there is no treatment for Josiah’s condition.
But things became a little easier from the moment they connected with Very Special Kids.
At 13 months old, Josiah came for his first overnight stay in the Very Special Kids children’s hospice. It was the first time Ruth and Travis felt they could leave him somewhere—with the peace of mind that he was well cared for.
“Nobody truly gets the mental load and the stress that comes with having to make the right decisions for a child like Josiah.
To have Josiah monitored by people who can dedicate the time and who care enough to do it too, that is everything to me. I trust Very Special Kids more than anyone with him.”
– Ruth
Everything we do—from specialised respite care at our hospice to compassionate counselling support for family members—is only possible because of our kind supporters.
As Victoria’s only children’s hospice, your support means so much to families like Josiah’s.
While surgeons were able to mend Josiah’s heart, even today, the frightening reality is that Josiah continues to be in and out of hospital.
What will Christmas look like for a family like this, whose lives can be turned upside down in a heartbeat?
Please hold Josiah and his family close to your heart and make a very special Christmas gift today.